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day 9 status update

January 13, 2013 5 Comments

After eating breakfast, Amanda pretty much was falling asleep sitting up in her wheelchair. We put her back to bed and she’s been asleep ever since. The monitors show that all is well with her O2 saturation and heart rate but it will not tell us if she is getting rid of the CO2.

After talking to the pulmonary doctor and the neuro doctor here, it sounds like everyone is in agreement to get her transferred to Children’s Hospital so she can see the neurosurgeons who saw her years ago, have her records, and are familiar with patients like her. Have already gotten an email back from the nurse at the spina bifida clinic at the hospital so she has the heads up about Amanda and has forwarded my frantic email to the Neurosurgery group.

Let’s see what tomorrow brings.

just Laurel

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5 Comments Filed Under: Hospital updates

About Laurel

Laurel is a wife and mom to three girls, including Amanda, who has spina bifida. She's a nurse and writer, sharing about her faith and journey as a caregiver

Comments

  1. NajeemaIman says

    January 13, 2013 at 5:32 pm

    Continue to stay strong my friend….you are in our prayers……

    Reply
  2. Maggie says

    January 13, 2013 at 7:31 pm

    I look forward to you every day. So glad to here she is going back to children hospital. Prayer are with you .
    Margaret powers schear

    Reply
    • justlaurel says

      January 13, 2013 at 9:28 pm

      Thanks Maggie. Appreciate your prayers.

      Reply
  3. Joanne Burke says

    January 13, 2013 at 9:22 pm

    Just finishing reading your book and following along here. Amanda and your family are in thoughts often throughout the day and prayers are being sent up for all involved- including her medical care team!

    Reply
    • justlaurel says

      January 13, 2013 at 9:29 pm

      Appreciate your thought and prayers Joanne. Thank you,

      Reply

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Hey – it’s me! just Laurel. I am just a 50-something year old mom who lives in southeastern Michigan. Married forever to the love of my life, Ted. We are just like any other family with kids out there: working hard and doing our best to raise great kids and to live as decent, moral people.

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