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… of God’s gifts and perfect timing … part one

November 6, 2014 Leave a Comment

Well ‘justlaurel’ cannot stay silent forever. I know that many of you are mourning the loss of our Amanda as well.  I also figure that so many of you are also asking and wondering, “What happened?”  Although my days are still quite foggy with the inability to sometimes believe that she really is gone, Ted and I keep placing one foot in front of the other because life goes on.  We are still acclimating, or trying to acclimate, to life without Amanda.  We are doing okay.  It is still a nauseating swing of emotions from sorrow to happiness but we have each other to hold onto.  We are moving forward.

So …

What happened?

If you’ve been a reader of my blog or are a close friend or family then you are more than aware of the breathing issues Amanda had. At thirty-one years of age, Amanda weighed only 55 pounds and was stuck in a very small squat body.  Her little torso housed her liver, stomach, intestines, heart, and all the normal parts including a set of lungs.  For most of her life they served her well.  But things got crowded in there and they were tiny squished little lungs that did not inflate very well.  Amanda also had sleep apnea – that means she would forget to breathe when she was asleep.  At night, Amanda slept with a mask on her face while a machine blew air in and out to keep her breathing in her sleep.  For a whole year after moving into her apartment, Amanda kept that mask on all night.  And then about six months ago …

… that’s when things all changed. Again, if you were a reader of mine, then you will know of how we were struggling to perhaps move Amanda to a group home, or get her a roommate, or to make some kind of change.  Amanda was taking her mask off at night and it was affecting her health.  When you inhale oxygen, you blow off carbon dioxide.  Amanda was not blowing off enough CO2 – and CO2 is like poison to your body when it builds up.  Hence, our frustration and anxiousness at making a change for her where we could have more help with staff at night to be watchdogs to keep her mask on.

SpiralI saw it coming. For the past months, I saw Amanda spiraling downward.  I tried reasoning with her, bribing her, and then pleading with her to keep her mask on.  She never could explain why she took it off.  We can’t tell you if it was a conscious thing or something she was doing in her sleep.  But she was tired a lot, confused on some days, and just not her usual sparkling self.  I worried each night when she went to bed, prayed she’d make it okay though the night, and waited anxiously each morning to hear from her.

On Saturday, September 27, I had an eight a.m. bible study to go to. I had already heard from a text from Amanda that she was awake.  Her staff was not scheduled to arrive until 8a.m.  On my way to my bible study, I decided to stop by her apartment and check on her.  It was 7:40a.m.  Amanda was up and watching TV but seemed quite weak and her color was not so good.  I set out some breakfast, had her take a drink of juice, and with a heavy sense of worry, I left for my bible study.  After the bible study, worry had gnawed a hole in me and I felt I had to check on her again with my mind already pretty much made up that I was going to bring her to the house with me for the day.  When I returned to her apartment, she looked even worse.  I phoned Ted and told him I was coming home with Amanda and bringing her oxygen machine as well.  I just had a feeling that she might be needing it.  I hurriedly packed Amanda, her wheelchair, and the oxygen machine in the van.  When I pulled into the garage, Ted unloaded the oxygen machine for me and I told him to plug it in right away in the kitchen where Amanda was going to be.  I followed him with Amanda in her wheelchair.  As we stood in the kitchen we watched Amanda go from purple lips to a blue face.  Her head dropped back and her arms went limp.  Every part of her went blue or gray.  I yelled at Ted to call “911” and grabbed Amanda out of her wheelchair and placed her on the carpeted family room floor.  Can you believe it?  I had just taken my annual CPR refresher class.  I felt for a pulse.  It was there … but slow and irregular.  She was not breathing.  She was not moving.  She was very blue and her fingertips were purple.  I’ll never forget it.  I did some chest compressions and gave her some breaths.  And then EMS showed up.

This writing is titled “…of God’s gifts and perfect timing…”.

Well…

What if I had not checked on Amanda Saturday morning? What if she had lost consciousness at her apartment?  What if I had not gone back IMG_20140803_175618_289after bible study to check on her again?  Would we have found her dead in her chair by herself at the apartment?  Her apartment is in Woodhaven and not near at all to the fire station.  At our house in Trenton, the fire station is quite close.  What if I had not just the previous week taken my CPR refresher course?  It also helps when your neighbor is a Trenton cop and hears the 911 call and knows exactly who it is for and is there in seconds – showing the way for the rest of the EMS people.  What a gift.  What timing.

And then …

As I rode in the ambulance on the way to the hospital, our police officer/neighbor had patrol cars stop traffic at two major intersections to clear the way for us to get to the hospital. Amanda! … they stopped traffic for you!

Just a week or two before this day, Ted had commented that we should perhaps spend more time with Amanda. We saw her frequently and took her Sundays to church and to spend the day with us.  But we were thinking we should do more.

We almost lost Amanda that Saturday morning. But with God’s perfect timing, Amanda ‘came to’ at the hospital.  Her time was not up yet.  This was the start of a gift – two more weeks with Amanda.

 

… to be continued …

 

just Laurel

 

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amanda +3

October 17, 2014 1 Comment

Here’s the long video – more a documentary of Amanda’s life.

(copy and paste to view)

 

I am tired. I am numb.  Today was a long day – full of so many wonderful friends and family who came to remember Amanda.  Thank you.  Right now I am feeling like I failed her.  And it hurts.  And I cry and tell her, “I’m sorry, I’m sorry.”

Gonna take time.

just Laurel

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amanda +2

October 17, 2014 Leave a Comment

Apologies for not yet posting a blog … there are so many words swimming around in my head … and yet there are no words.

Ted finally got the video(s) done …. So where there are no words … here are photos. This is the ‘short’ version.  The next post is the ‘long’ one that is more a documentary of photos through 31 years.

 

 

 

Just Laurel

 

 

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amanda +1

October 17, 2014 Leave a Comment

It took some finagling to get Amanda’s sister, Jillian, up here from the island of St. Kitts where she attends school. On Wednesday 10/15 her classmates showed their support by declaring it ‘Purple Day’ in honor of Amanda.  Students and faculty took a picture with everyone wearing purple.  It was such a powerful message of support.  Had to share it with you.

Ross

We now have Amanda’s other sister, Kristen, here and both her brother-in-laws. It’s a full house with so many friends stopping by in the last days.  Today is Amanda’s memorial service and family will be arriving.

So much love and support.

<3

Just Laurel

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a m a n d a

October 13, 2014 2 Comments

Our hearts are broken.  Amanda left us yesterday and took the hand of Jesus to go running on the streets of gold.  She’s gonna be hard to catch now1507100_10202629730575498_445803345_n that she finally has legs!

I promise to share with you her last days … so many stories to tell.

For now – here are details for the Memorial service this Friday the 17th.  We have much to do and take care of this week – family coming into town so we can grieve together and laugh together as we will never forget our Amanda and all she taught us.

 

http://martenson.tributes.com/obituary/show/Amanda-Lynn-Greshel-101778207?f_e=1

 

just Laurel

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amanda 15

October 11, 2014 Leave a Comment

Today is the 2 week anniversary of Amanda’s collapse and our 911 call. It is day 15. U

We came home from the hospital this past Wednesday. She is still very sick but there was little more that they could do for her … antibiotics are working and white count is down … lungs are working as well as they can.

So in keeping with the theme of the past 2 weeks …

Today is brought to you by the letter “U”

U is for UPDATE.

And that’s what I’m doing … giving you the update.

U is for UNLIKE.

And unlike most all of her other hospital stays where Amanda bounces back and is eager to get home and back to her usual … (oh – another “U”!) we have no bounce this time. She is weaker than ever.  Her body is a bit bloated from extra fluid retention so sitting up in her wheelchair is uncomfortable (wow – didn’t think there’d be so many U’s) and quite frankly she is so weak that she can’t hold her head up for long.  We keep her semi-reclined and propped up on the big chair in the family room.  She sleeps … drinks a little … eats a little … sleeps.

U is for UTTERLY.cows

What a funny word. Makes me think of UDDERLY

Ha ha – must keep a sense of humor.

We are utterly tired. We are utterly scared and in pain for how this is going to play out … will Amanda get her ‘bounce’ back or not. We are utterly at God’s mercy and timing.  Ted and I keep going by the words, and our prayer, and our mantra for now:  “Strength and peace.  Strength and peace.”

Of course, I probably could have kept this post a lot shorter by summing it all up in Ted’s perfect word that describes this whole thing …

UNBELIEVABLE.

just Laurel

god

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amanda 12

October 8, 2014 1 Comment

The letter of the day is “H”

H is for HOME.

We are home.

Home is good.

But Amanda is not so good. I’ve never brought her home so weak and confused before.  But, they couldn’t do anything more for her at the hospital, so we are all hoping that home will be the best medicine.  She is on oxygen at this point, and will be getting IV antibiotics every other day.

She is not using her phone yet – can’t figure the buttons out at this time – so don’t try to call her please. Fortunately I do not work for the next couple of days so I will be looking after her.

I’ll let you know later how things are going.

Just Laurel

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amanda 11.2

October 7, 2014 Leave a Comment

By the way …

I know I already used the letter “A” but I asked Amanda to pick a letter of the alphabet and (of course) that’s the one she told me … easy ‘cuz it’s the FIRST letter of the alphabet and “A” is for Amanda name

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amanda 11

October 7, 2014 Leave a Comment

 

Today has been brought to you by the letter “A”

A is for AMANDA

Oh, Amanda, what are we ever going to do with you? We almost lost you eleven days ago and here you are, still kicking and fighting.

A is for AWFUL

That infection you caught got into your blood and went and partied in your lungs. Awful bad infection has left your lungs in awful shape.

A is for ANSWERS

Oh how I wish we could have the answers to what will make you better? Hopefully, with the talk of them letting you out of here tomorrow, we will find that home will be the best medicine for you.

A is for ANOTHER day

For each and every one of us, to wake up tomorrow morning is a gift. Thank God for sunrises and the blessings of another day.

Just Laurel

sunrise

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amanda 10.2

October 6, 2014 Leave a Comment

 

W is for WONDERFUL …

… and wonderful is how my house smelled when I went home for a few hours this evening.  Ted and I have been grabbing fast food and $5 pizzas and today a friend from work dropped off a crock pot full of soup on the back porch.  When Ted got home he brought it in and had it plugged in so I smelled it when I stopped home.  A loaf of bread and homemade sour cream streusel coffee cake to top it off.  Soup was delicious and made my tummy warm and happy and full.

Thanks Maryanne 🙂

W is for WORK..

I had to get someone to work for me last week, but I am working my days this week.  Ted will be here in the morning in time for me to leave the hospital and go straight to work.  I miss work and the people I work with.

Hopefully Amanda will be more herself tomorrow.

just Laurel

Leave a Comment Filed Under: Amanda, Perfectly Made, Hospital updates

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Hey – it’s me! just Laurel. I am just a 50-something year old mom who lives in southeastern Michigan. Married forever to the love of my life, Ted. We are just like any other family with kids out there: working hard and doing our best to raise great kids and to live as decent, moral people.

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