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amanda 7

October 3, 2014 2 Comments

Day seven in the hospital is brought to you by the letter “D”coffee

“D” is for DRIVE and today Ted has to drive to Cleveland and back for his job. He was up early and that brings us to another lovely “D” …

DELIVER

He stopped by the hospital on his way down the road to deliver me a cup of coffee   🙂    It was lovely.  However, the nurse was nice enough earlier to also bring me a cup of coffee (not as good as the one from home) but that resulted in too much caffeine.  One of those should have been DECAF.

Amanda slept a lot last night but is doing this DESAT thing.

What is that “D” word you ask?

Amanda’s oxygen levels all night would DROP and she would ‘desaturate’ – meaning she was not receiving enough oxygen through her lungs – and the alarms would go off and her heart rate would soar to try and move the oxygen-carrying blood. It’s like watching a roller coaster … all … night … long … and with all the bells and whistles and alarms.  Okay – I shouldn’t complain ‘cuz we both slept pretty well from 10p to 3a … and THEN the roller coaster ride commenced.telemetry

“D” is for DREAM. As I was sitting next to Amanda’s bed and DOZING off I had a dream that Amanda was in our kitchen at home and sitting in her wheelchair.  She started turning purple and all those other awful colors that she turned last Saturday and I said, “Oh look everyone, look at her color, she’s going to crash” …. And then I woke up.  Bad dream.  Bad bad dream.

So right now I wait while she finally has her spinal tap – or lumbar puncture – whatever you want to call it. We need to see if her staph infection is in her shunt and brain.  That will DETERMINE what happens next.

ttyl

just Laurel

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2 Comments Filed Under: Amanda, Perfectly Made, Hospital updates

About Laurel

Laurel is a wife and mom to three girls, including Amanda, who has spina bifida. She's a nurse and writer, sharing about her faith and journey as a caregiver

Comments

  1. Judy and Terry Waple says

    October 3, 2014 at 11:34 am

    We are praying for you all!! We can’t imagine what you guys are going through but please know our thoughts are with Amanda and all of you!! Sending you love and lots of hugs!!

    Reply
    • Laurel says

      October 3, 2014 at 1:31 pm

      Thanks so much <3

      Reply

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Hey – it’s me! just Laurel. I am just a 50-something year old mom who lives in southeastern Michigan. Married forever to the love of my life, Ted. We are just like any other family with kids out there: working hard and doing our best to raise great kids and to live as decent, moral people.

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