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amanda 6.2

October 2, 2014 Leave a Comment

The letter of the day is “A”

But you should already know that since this is day 6 … part 2.

And “A” stands for

Advances … as in … we are making advances. Finally.  Went for a CT scan of the head and spine so that they can get ready to do the spinal tap.

We’ve been waiting for this because it will give us…

Answers.

I pray the staph infection has not invaded her head and shunt. If it HAS then we might be looking at a transfer to Children’s Hospital of Michigan and having her shunt replaced.

But it is better to have answers than to sit in the despondent valley of the unknown and unanswerable.

“A” is also for appointment.

I feel guilty because I had a hair appointment today at 5pm and I was going to cancel it but Ted said I should go. Treat myself.  Don’t reschedule.  Clara said I should go too.

Ted can hold down the fort

See you all back here in awhile. (not really an “A” word – they are two separate words – but I feel like doing what I want to do since I don’t really have much choice for the rest of what’s happning around me right now!)

just Laurel

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Leave a Comment Filed Under: Amanda, Perfectly Made, Hospital updates

About Laurel

Laurel is a wife and mom to three girls, including Amanda, who has spina bifida. She's a nurse and writer, sharing about her faith and journey as a caregiver

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Hey – it’s me! just Laurel. I am just a 50-something year old mom who lives in southeastern Michigan. Married forever to the love of my life, Ted. We are just like any other family with kids out there: working hard and doing our best to raise great kids and to live as decent, moral people.

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