W is for WACKY. Amanda is definitely acting wacky. With my discussions with nurses and doctors around here, they tell me that it’s “ICU syndrome” where patients are out of touch with the real world and over dosed with the stimulus of interrupted sleep, monitors beeping, and the hospital setting. Last night she wanted to see the cat in the hall, today she asked if Kristen was coming back (? – her sister was not even here but Amanda said she saw her) and then when she woke up from a nap she wanted to “go over to the table” … she often sits at the dining room table at her apartment and I told her, “You’re not at your apartment” and she said “I want to go sit at my table” and I said “You’re in the hospital” and back and forth it went until she gave up. A few minutes later I asked her, where are you? “Hospital” she replied.
W is for WIPED OUT. Amanda sleeps, wakes, eats, and then is exhausted and sleeps again. Along with the wacky behavior described above, when I asked the doctor about this and questioned why she was so wiped out, and was it because she was sicker than I thought, he replied, “Oh she was VERY sick.” When we get outa here, it is going to take a while for her to get her strength back.
W is for WONDER – as Ted and I wonder if Amanda is going to really get her strength all the way back to where she was before this hospitalization. This experience really knocked her down hard.
W is for WISH.
I wish she wouldn’t have to go through this stuff. And I wonder what she’d be like if she hadn’t been born with spina bifida. But I can’t dwell there.
W is for WORK.
Ted and I will help Amanda get back to the best state of health we can get her to. We will work together to make the most of what she’s got.
God’s not done with her yet.