After eating breakfast, Amanda pretty much was falling asleep sitting up in her wheelchair. We put her back to bed and she’s been asleep ever since. The monitors show that all is well with her O2 saturation and heart rate but it will not tell us if she is getting rid of the CO2.
After talking to the pulmonary doctor and the neuro doctor here, it sounds like everyone is in agreement to get her transferred to Children’s Hospital so she can see the neurosurgeons who saw her years ago, have her records, and are familiar with patients like her. Have already gotten an email back from the nurse at the spina bifida clinic at the hospital so she has the heads up about Amanda and has forwarded my frantic email to the Neurosurgery group.
Let’s see what tomorrow brings.